Sunday, May 5, 2013

Layers of Truth We Left Out of the Obituary



            Never mind that the cost of running Mom’s obituary twice was the same as the cost of round-trip plane fare for six of her grandchildren and great grandchildren from the East Coast to attend her memorial gathering in California.  I have another frustration with obituaries.  They have to leave far too much out. 
            I never explained the reason that I identified Mom’s parents as her adoptive parents.  It wasn’t to distinguish them from “real” parents.  Adoptive parents are very real.  Whoever loves and cares for a child is the real parent.  I said adoptive parents because later in her life we found four siblings my mother, brought up as an only child, didn’t know she had.  I couldn’t go into detail about how much she loved her (adoptive) father, whose grocery store in Los Angeles went out of business as supermarkets prevailed and who went door to door during the Depression trying to sell products as a Fuller Brush man but not succeeding because he was too honest and gentle to push his customers, also struggling in the Depression, into buying something they didn’t need.  Mom loved him and admired him precisely because of his kindness and his putting human connectedness ahead of success.  
            I couldn’t explain about her love for and sadness about her son, my only brother, David, who started having epileptic seizures at the age of four and her hopes at the Epilepsy Center at UCLA, where she took  him when he was a little boy and got him completely seizure-free—until he returned home. His psychological problems were exacerbated by his neurological ones and the medicine he took to control his seizures and the damage his seizures did to his brain when they couldn’t be controlled…All the years Mother and I went together to visit David at Napa State Hospital and the years she went alone when I was overseas.  The years after budget cuts closed Napa State Hospital to all but the criminally insane, when we looked into other places for David and found Garfield, where we visited him together until Mom felt she could no longer leave the house…I had to leave out the times she asked about David and he asked about her…I had to leave out the plans we had to take him to see her at Aegis on her 90th birthday, which got left out of her life.   
             I couldn’t describe the hours I spent with my mother after she had dementia and a fear of leaving home—except one Friday when she realized that she hadn’t responded to Nancy Pelosi’s request for a donation for the Democratic Congressional Campaign Committee and the urgency to save the country helped Mom overcome her agoraphobia.  But when Mom felt that she couldn’t leave the house, that gave me more time to be with her, this mother whose life was so active that we had to be sure she didn’t “have other plans” for Mother’s Day. Once Mom was house-bound, I could visit her more often.  At first we made a ritual on Friday afternoons of filling out a memory book called The Story of a Lifetime.  It was a personal history that included periods of our national history:

Depression Era—Her father had worked for the YMCA and even been able to take her mother to Paris after World War I as part of his job.  (I’ve looked this up and found quite a bit on the Y helping with the A.E.F.—American Expeditionary Forces or the Armed Forces in France.)  When Mom was a little girl, he had a grocery store, but it failed after supermarkets invaded; a friend’s mother once said, “Here’s a nickel to buy a head of lettuce in your dad’s store if you can find one that is fresh.” 

World War II  She eloped to start a baby before our dad went overseas with the Navy.
Before he left to go overseas, they showed their sympathy for the Japanese Americans by taking them coffee, tea, and donuts.

Her father got a good job with the Works Progress Administration supervising women left behind to fill the jobs men had before being called into the military

The 1960’s--Discussions about Civil Rights—integration in the South, where we were living—an introduction to Harry Golden and Two Cents Plain

The Feminist Era—got her degree, a job, and a divorce and began a long-term relationship with a woman she met at work

Protested against U.S. intervention in Central America
Protested against nuclear proliferation—her grandson’s first words were, “Two, Four, Six, Eight!  We don’t want to radiate.”
Protested against the wars against Afghanistan and Iraq.

“Current events” showed evidence of short term memory loss when she repeatedly said, “When I saw that footage of Abu Ghraib, I was horrified that they were torturing our soldiers.  Then I realized it was our soldiers who were torturing them.  I couldn’t believe it.  When I saw the footage of Abu Ghraib, I was horrified that they were torturing our soldiers.  Then I realized…”

A historic sports event was perhaps the first time we had definite evidence of Mom’s short-term memory loss.  She’d been watching a Giants game with Jonathan, and in the last minute, the Giants made a homerun and won the game in the end—an upset victory.  They cheered.  Then ten minutes later she said, “I wonder whether the Giants game is over.”

Took out this paragraph:  In her eighties she was diagnosed with Alzheimer’s and in March 2011 she moved to Aegis Living of Pleasant Hill, where she played the piano for other residents and staff, sometimes believing that she was employed there. 

Mom’s partner Kathy thought “sometimes believing that she was employed there” might seem disrespectful, but to me it was what saved Mom from total heartbreak.  Above all else, she wanted to feel useful. 

Took out  this:  She often spoke of her love for her son David and was looking forward to his visit on her ninetieth birthday October 25.   

For decades my mother and I went together to Napa to take my brother, a patient there,  out for lunch.   Then, when Reagan and Wilson closed Napa down except for the criminally insane, we started going together to see him at Garfield, a facility in Oakland for people with neurological problems.  I  wanted this for my brother, who responded, “You mean she’s still alive?” when I told him that we were going to take him to see our mother on her birthday.  

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